OUR MEDICAL JOURNEY. FROM HELL TO HEALING.
Welcome to our group Heal on Earth, Child Group! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.
Deanna’s medical history
* Anxiety and panic attacks started at age 12 after having some type of an insect bite on my thigh.
* Red stretch marks developed on my inner thighs at age 12.
*Intermittent fatigue & brain fog.
* Routine bloodwork showed ebstein barr virus, no lyme disease, no con-infections???
* Symptoms waxed and waned. Flare up of panic and paranoia at age 13 after getting HEPATITIS B. vaccine.
* Routine bloodwork showed ebstein barr virus, no lyme disease, no co-infections???
* I developed fibromyalgia, developed depression, and supposedly rheumatoid arthritis after getting HPV vaccine at age 19.
* Routine bloodwork showed ebstein barr virus, no lyme disease, no co-infections???
*Starting taking lexapro due to anxiety and panic attacks. The lexapro was a bandaid for the symptoms. Not getting to the root cause would adversely effect my future children.
Sick, Misdiagnosed Mommy gives birth to a beautiful, sick baby
* Had my first born at age 27. Beautiful baby. Gift from God. Born low tone, sensitive to light, poor latch, poor neck control, detached a bit, sweat profusely, global developmental delays, OCD with doors being shut from a young age, OCD with being held a certain way, exhibited headbanging.
* I experienced blurred vision, my body was on fire, diagnosed with fibromyalgia, alot of dizziness, intense intermittent fatigue, an increase in anxiety and panic attacks during and after pregnancy.
* Symptoms waxed and waned for both of us.
*Daughter got PREVNAR vaccine at age 2 years 6 months and had impetigo on her chin. Immediately daughter developed motor tics, vocal tics, stopped responding to her name, increase in OCD, developed sef-talk and a haunted look in her eyes, threw her had back, developed rage, oppositional defiance, and aggressive behaviors.
STEPS TO DIAGNOSIS FOR MY DAUGHTER AND ME:
*My daughter started seeing PANS/PANDAS specialists at age 2 years 9 months.
*Blood work determined low IGGs.
*CDCs bloodwork showed no lyme disease.
***Igenix and Galaxy labs bloodwork ($3,000) showed my daughter and I were positive for lyme, bartonella, and babesia.
* Daughter received oral antibiotic, anti malaria, antifungal cocktails for 2 years. Symptoms improved to 30%.
*Daughter received IVIG monthly through immunologist (who is a PANS/PANDAS specialist), for one year. Symptoms improved to 50%.
*Daughter and I started taking low dose naltrexone every night (prescribed through integrative Doctor/lyme specialist/PANS/PANDAS specialist). Energy levels improved, mental clarity improved, flare ups reduced.
*Daughter and I received monthly IV OZONE for 3 years. Symptoms improved to 80-90%.
*Daughter and I did a chelation challenge through doctor’s data through our functional medicine Daughter and I then had 7 IV chelation treatments. Heavy metals (lead, mercury, and antimony) are now within normal limits.
*Daughter and I are on a maintenance plan during flare ups.
*I get IV ozone and IV peptides and take low dose naltrexone daily.
*Daughter gets IV ozone during flare up and takes low dose naltrexone daily.
We went through HELL as many families with this condition have experienced. Healing was a marathon. We have now healed and are on a maintenance plan. It is time for us to give back. That is our reason for starting, Heal On Earth, Child Inc. To provide advocacy for children and their families and (eventually) medical scholarships to children so they can heal. Hang in there <3.